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  1. University of Arkansas for Medical Sciences
  2. Medicine and Meaning
  3. Author: mmassirer

mmassirer

Artifact

Our research monitor called her trembling an artifact. I almost believed it. She apologized for shaking while the cuff squeezed her arm and the room waited for a number. Outside the graph, her fingers kept closing around the paper bracelet, as if holding her name in place. Measurement began there: pressure, pulse, person, permission, trust.

Author Bio:

Jason Bean is a neuroscience undergraduate and student researcher at Baylor University. This piece explores the tension between recording a physiological signal and attending to the person who produces it.

Filed Under: 15 55-word

A Brave Girl in Bonteheuwel 

Written By: Amir Ahmed Sibda 

The child sits on the bed, silent. 
Feeling no pain.  
The child lays on the bed, talking. 
School zones shouldn’t have speeding taxis.  
The child lays on the bed, screaming. 
Betadine burns, and so does the POP cast. 
The child hops off the bed, limping. 
“Thank you” 
She will walk again, but some never do. 

Author Bio:

Written by Amir A. Sibda, a third-year medical student at University of Cape Town, this piece reflects on a clinical encounter at Vanguard CHC. The young girl’s nonchalance highlights how deeply normalised preventable trauma has become in the community. It stands as both a tribute to the resilient children seen in our clinics, and a poignant reminder of the victims who go unseen. 

Filed Under: 15 55-word

UWorld 

Written By: Sarah Marion 

She felt like a UWorld question
Purple lips, livedo reticularis, lives on a farm with turtles, oral ulcers, found face-down I fell asleep working her differential  
That’s broad and scary  
This morning she said I must be new because she would have remembered my beautiful dress  
A medical mystery who only has capacity to complement  

Author Bio:

Sarah Marion is a PGY-3 at Hospital of the University of Pennsylvania and loves using poetry to parse through the challenging parts of medicine.  

Filed Under: 15 55-word

Nightmare

Written By: Celokuhle Mbatha

Ghosts gather around his deathbed, whispering about what he might have been. If only he had tried, taken chances, perhaps his story would have been different. Now sixty-five, a retired doctor, divorced and alone, battling prostate cancer. His career consumed his life. Was it worth it? Suddenly he wakes up, realising he’s late for class.

Author Bio:

Celokuhle Mbatha is a third-year medical student at University of Cape Town, South Africa, who wrote this piece to explore the fleeting nature of time, the sacrifices of a medical career and the question of what makes a life well lived.

Filed Under: 15 55-word

I Understand 

Written By: Tshegofatso Kgatshe 

I didn’t know she had aphasia.  

I was too concerned with completing my portfolios to notice. 

Soon, I’m performing charades to try and translate her unintelligible murmurs. 

I remain unsuccessful.  

I’m getting frustrated.  

She watches me give up.  

Then, her eyes well with tears, and her voice shakes. 

“Why?” she whispers.  

I understand her now. 

Author Bio:

Tshegofatso is a third-year Bachelor of Medicine and Bachelor of Surgery student at the University of Cape Town. Inspired by an emotional interaction with one of her first patients, she wrote this piece as a reflection on the lessons that allowed her to grow in empathy, understanding and patient-centered practices. 

Filed Under: 15 55-word

The Hands

Written By: Nathaniel Morsches 

Before the start of the shift, before I could even make it to the doc box, the police met me at the entrance to the Emergency Department. But if I was already thinking of quitting, what did it mean that this made me want to stay? Out of spite, possibly. Or duty. Or some bruised, unnameable thing. 

“Are you Dr. Ross Magdasal?” the tall, brown-haired officer asked me. He pronounced it like, “Maggot sail”. 

“Yes. Am I in some kind of trouble, officer?” 

“No legal trouble, but we need to make sure you and your family are safe.” 

“I’m sorry?” 

“At 1816 hours, your secretary received a phone call from an unidentified male-sounding voice who stated that his intention was to murder you and your family.” 

The idiot had called from his home phone, so the police had arrested him within an hour after this conversation. Barely remembering when I actually saw the patient 2 weeks ago, I had apparently instructedthe nurse that two turkey sandwiches was enough and that we needed to save the last one for a patient who had not yet had one. Well, Neil didn’t like that, so he sent this death threat to ensure that his point was made. 

I had to drive home, bring my family across town to stay with my sister, and tell my crying wife that everything was going to be okay. 

I was an hour and a half late getting started seeing patients, but my colleagues didn’t give me a hard time. It wasn’t a death threat for them today, but maybe it was getting punched. Maybe it was getting spit on. Maybe it was getting sued for telling an obese patient that losing weight would help their health. 

I didn’t bother asking my supervisor if I could stay home. There were no replacements for me, so I just started my work. I thought of my family scared at my sister’s place and hoped I’d be able to focus at all that shift. 

“No, you don’t understand, sir,” I said to the patient. His hands were balled into fists, so I took a step backward. “I can’t give you anything to drink. You’re going to surgery. If –” 

“I am literally dying of thirst, man. If I discharge myself AMA, would you give me a drink?” 

“You can’t leave Against Medical Advice. You don’t seem to hear me, sir. This is serious. If you leave, I’ll tell you what will happen: Your oxygen levels will drop so much that you will eventually pass out. Hopefullybefore you die, someone on the street will see you and call 911. Then the ambulance will bring you back here, and then we will go through all of this again, except this time it will be under implied consent, since you won’tbe conscious, and you’ll be almost dead. And all this for a sip of water?” 

“If I leave AMA, will you give me a drink?” His hospital gown had slipped off of his left shoulder and I could see the impeccable implanted pacemaker scar on his chest.  

“Yeah. Fine. But please don’t–” 

“Okay, I’m leaving AMA,” he said. He removed the gown and began putting on his shirt. “Go get me some water.” 

I brought it to him while the nurse discharged him from the board. The man gulped it down and smiled. 

“Okay,” he said. “I’d like to check back in now, please.” 

“Really?” I muttered to myself. I stood outside the room for a second and screamed without sound intomy hands. 

Next patient, I guess. I rushed over to my desk as my colleague transcribed her note with the microphone AI software. 

“You alright, Ross?” Dr. Jennifer Glass asked me. She sipped lukewarm coffee and looked like she hadn’t slept in days. 

“Yeah. All good. Guys like that last guy make me wanna quit healthcare. I just hate it when they interrupt me, you know?” 

“Yeah, I know. But I’m talking about everything with Neil and his nice little phone call for your family.” 

“Oh, yeah. I’m alright, Jen. There’s not much to do about it. You know they’ve already got him in custody?” 

“Oh good. Is there anything I can do for you or your wife?” 

“Nah. We’re good. Thanks for the offer, Jen.” 

“You sure?” 

“Yeah.” 

“You can tell me if you’re having a hard time, you know,” she said. 

“Jen. I’m fine.” 

An alarm on the monitors chimed. I used to hear them go off, but now, they’re more like elevator music. 

“Hey, are you gonna get the flank pain or the migraine?” she asked. 

“My daughter gets pediatric migraines,” I said. “I’ll take that one.” 

Heading into the room, a man laid in bed laughing at a TikTok video of a body builder in neon tie-dye running through the streets of Baltimore. 

“Hey there. My name is Dr. Ross Magdasal. What brings you in tonight?” 

He held up a finger indicating that I should wait a few more seconds until the video was done. Once that business was complete, he finally looked me in the face. The patient was here for a headache which had lasted for six days. He told me about his history and the medicine his primary care had prescribed, Sumatriptan. It hadn’t worked. 

“What’s your pain on a scale of 0 to 10?” I asked. 

He chuckled like I asked him a stupid question. “20,” he said, “And I know you might be tempted to just type in 10, but I’m telling you it’s off the charts. Type in 20.” 

“Sir, I don’t have the ability to type in anything. It’s an electronic form. I have to click one of the numbers. If I put 10, it shows that it’s the maximum. And besides—” 

“My pain is more than a 10.” 

“I understand, sir. May I finish what I was saying?” 

“Fine.” 

“The number doesn’t actually mean anything. Its only importance is its relative change later. If you say eight later, then that tells us your pain has improved, but your initial pain rating doesn’t actually matterotherwise.” 

“Now my pain’s a 25, asshole.” 

“Okay. So what I’ll do is write for the migraine cocktail. It’s very effecti—” 

“You’re not listening to me. There’s only one medicine that ever seems to help. I can’t remember its name. Hmm… I think it starts with a D…” 

“Please stop interrupting me.” 

“Are you going to help me or not?” 

“I’ll need to look through your chart.” I got up from the stool and walked out. When no one was looking, I slammed my fist into the wall. No security guards came running, so I looked back at the wall and gave it a solid headbutt. 

“What’s the matter, Ross?” Dr. Glass asked back at the doc station, while I rubbed my knuckles. The peeled back skin was gray and translucent. 

“Nothing,” I said. 

“Oh yeah? Nothing? Why do you look like shit then?” 

“I… look who’s talking. There’s yogurt on your chest.” 

“Not good enough, Ross,” she said as she wiped her scrub top with a napkin. 

“Fine. You wanna know why I’m mad?” 

“Yeah.” 

“He asked for the medicine that he can’t remember the name of, but it starts with a D.” 

Jen paused, processed, and then started laughing. I didn’t join her. The medicine was Dilaudid, and the patient knew exactly what it was. Was it possible that the guy wasn’t trying to abuse the system? Yeah, of course. But his chart showed that he’d filled prescriptions for narcotics at 17 different pharmacies all over the state in the last three months, and I’m just trying to get through this damn shift. 

For a moment, I imagined Neil and the starts-with-a-D guy recognizing each other. A small nod. A shared language. The kind of men who know the system better than we do. 

“I don’t know how much longer I can do this,” I said to my computer. 

“Code blue, trauma room 2, emergency department,” the overhead speaker said, “Code blue, trauma room 2, emergency department.” 

“I got it.” I said to Jen. 

“Come on, Ross. You’ve had a rough one today. Why don’t you let me—” 

“Jen. Drop it. I already have my gloves on.” 

The patient was a seven month old child. Goddamnit. There was cyanosis around his lips, and his mother who had carried him in from triage was screaming in the corner while staff piled into the room. My favorite tech, Yvonne, had already begun chest compressions because the baby’s heart had stopped. 

I looked at this little boy who had the same size and shape as my own son. Everything around me was quiet. I heard the dull shuffling of Hoka shoe soles across the floor, but no one shouted over each other. They just pumped his chest, started an IV, and looked at me for orders. It was actually this serene silence that livedin my nightmares. It was like the sound of getting caught under the surface of a frozen lake. 

“He’s in asystole. 1 milligram epinephrine,” I said. After intubating him, we went through the Advanced Cardiac Life Support algorithm over and over until I knew where things stood. 

The mother sat at the very edge of her chair, with her back straight, hands on her lap, and eyes boring into me. Her left leg was bouncing up and down. 

“Ma’am,” I said, “we’ve been resuscitating Mano for 35 minutes now, and we haven’t seen any indication that his heart will begin beating on its own again. You told the triage nurse that you had found him like this and he was down for an unknown amount of time?” 

The mother wriggled in the chair and then just stood up to meet me. 

“Yes, doctor.” She grabbed my forearm and squeezed. “Oh God.” 

“I’m so very sorry, ma’am, but I believe it’s time to stop.” 

The sterile lights reflected off her glasses, hindering my ability to view her eyes, but I could still see the tears sneaking down her cheeks. 

“No, no, no, no. Isn’t there anything more you can do? Please. He’s my son.” She wasn’t angry. She was begging. 

“Mano has the same eyes as my own boy. I would not tell you it’s time to stop if I had any doubt in the world. I am so sorry.” 

She nodded at me and walked out of the room like a woman waddling out of a movie theatre after the rolling credits. Eyes glazed over, wide and careless gait ready to knock over the trash cans on her way out. 

She stopped and turned to face me in the hallway. Everyone around me hustled about, but she was still. I wasn’t sure if she said it to me or not: “How can we ever come back from this?” 

“Stop compressions,” I told Yvonne. “Time of death 23:47.” 

The mother spent time alone in the room with Mano. I imagined her talking to him about what it would have been like to take his first steps. Ride his first bike. Take his first date to the prom. After his first dance with his bride, take mama’s sweet wrinkly hands and sway to the music together in front of many witnesses and God. 

When she was done and had gone home, I saw Yvonne gathering the supplies for the plaster mold. Sothe parents could remember. As if they’d ever forget. 

“Wait, Yvonne. I’ll do the mold this time.” I said. 

“You sure? Docs don’t usually have to do this.” 

“I know, but I want to.” I noticed her badge holder was an image of a lotus flower. 

“Okay. Well, I gotta go do a blood draw in room 18 anyway. Thanks. Here’s the stuff.” 

I snuck through the curtain and looked at Mano. He was too small for such worldly violence. There was no sound. Just that serene silence that would keep me awake that night and every night, which I didn’t dare break. 

His milky palm naturally spread its fingers apart in the latex, but his arm wasn’t quite long enough to reach over the side without spilling the liquid. I had been too stupid and overfilled the container. I’d cling to this earth as a wandering wraith before I would make this mold imperfect, so I dumped out the latex and started over. 

Before attempting immersion again, I put both of his hands together in a prayer position and I gently placed my forehead against his. Those hands were the same as my own son’s, angelic and lovely. I held both of them in mine and I whispered into his ear, “It could have been so different, little boy.” 

The mold came out exactly as his mother would have wanted. It captured every little crease and tiny pore. His wide fingers were both proud and awkward, which made me imagine a stuttering prince. Still gloved, I wished I had made the effort to feel his skin with my hands. 

Slipping into the bathroom, I locked the door and watched my reflection frown and then sob into his palms. I waited patiently for him while he cleaned himself up with that rough brown hospital paper towel as it scratched up his cheeks and nose. When the sclerae of his eyes finally went back to pink instead of bloodshot, I left him in the dark and closed the door behind me. 

I didn’t look at Jen as I passed the doc station. Everything smelled like latex and warm plastic. Someone yelled, “No! Not yet! I’m not ready!” down the hall away from me, but I just walked to my next room. It was a man with ankle pain after he had stepped in a pothole. 

“Where the hell have you been?” he said. 

“Excuse me?” I asked. 

“I’ve been waiting for three hours.” 

“I’m sorry, sir. There was an urgent matter that required all of my attention.” 

“I asked for a sandwich an hour ago.” 

“I’m very sorry about that, sir. I’m going to do my best to take care of—” 

“You keep saying sorry, and there’s still no sandwich in my hand.” 

I looked at the tanned, leathery appendages he called hands. He had clubbed fingers from smoking for decades. Could they even hold a sandwich without tearing it to pieces? 

“Please don’t interrupt me,” I said. 

“Get me a fuckin’ sandwich now.” 

There was a patch of red paint that was peeling in the top right corner of the wall I faced. The red flap moved as the air condition blew past it. It was waving at me. Taunting me. The monitor was disconnected from the patient and it beeped. It screamed, actually. It was getting louder, and I felt vomit tickle the back of my throat. 

“You know, this isn’t an easy job,” I couldn’t help but say. 

“What?” 

“People like you do not make this job easy. You wanna know what I was doing before I came in–” 

“Well, boo hoo, Doc. Hopefully, your million dollar paycheck will help you sleep–” 

“No. God. Stop. You may not interrupt me again. I was resuscitating a baby who had died in his sleep. You think your sandwich is higher on my priority list? Get a life.” 

“Oh,” he said. A Stroke Alert went off overhead. Jen would get that one. An alarm beeped in the room over and I stared at the man.  

“Yeah.” 

“So is the baby okay? Shit. I don’t know why I asked that,” he said, voice caught between guilt and disbelief. 

I left him without a word and went into the store room. I found gauze wrap and started repairing my injured knuckles from earlier. Before I left the quiet room, I called my wife. She woke up for me, but was glad to hear my voice. I was glad she was safe. 

“Oh, Ross. There you are,” Jen said. She almost bumped right into me as I was coming out of the store room. She put a hand on my shoulder and gently pushed me back in, and closed the door behind her. 

“Jen, what’s going on?” I asked. 

“You are a great doctor. I’m on your side.” 

“Okay.” 

“You’ve had a really bad day, and I think it’s affecting you.” 

“No, it’s not, Jen. I’m fine.” 

“What are those bandages on your knuckles then?” 

“Take it easy,” I said. 

“Why are your physician notes written like a mad man?” 

“You read my notes?” 

“Yeah.” 

“Why would you do that? I thought we were friends.” 

She handed me a printed copy of a few of my notes from the last few hours. “Can you blame me?” sheasked. 

The packet of notes had highlighted areas. I had missed an elevated creatinine level in a patient with no prior history of kidney failure or congestive heart failure, and I didn’t give fluids. There was another patient who should have had linezolid for cellulitis, history of MRSA, and allergy to vancomycin. I had given Bactrim like a first-year resident. 

“I can’t believe you read my notes, Jen,” I said. 

“I’m glad I did. You can fix this now. But tomorrow, administration will be able to look it all over.” 

“They’ll be able to see the changes any way. It still records everything you ever sign.” 

“Ross,” said Jen, “you know you have to change this stuff.” 

Behind Jen, next to the door of the store room hung a poster. “Physician Wellness” it said across the top in yellow letters. It was an advertisement – my friend, Harry, head of the psychiatry department was offering free sessions of counseling to doctors at the hospital. 

“I don’t have to change anything,” I said. 

“What are you going to tell Sabrina in the morning? That you actually thought your patient was becoming a demon?” She was referring to another note, in which I had clearly meant to say that the patient had a “labile demeanor.” 

“I don’t know yet. I’ll come up with something, though.” 

“Ross, please. Let’s go sit down, fix your notes, and go over some of these treatment mishaps. I’ll help. I’m here for you.” 

“Why do you want to help me?”  

“Come on, Ross. You’re gonna get through this,” she said placing her hand on my shoulder. She opened the door and the sounds of chaos from the department came flooding into my sanctuary.  

I thought of Mano and whispered, “It could have been so different, little boy.” 

“What did you say?” asked Jen. 

I grabbed the Physician Wellness poster from the wall and put it into my breast pocket. Jen and I sat down together and got to work. 

Filed Under: 15 Fiction

Cloistered Beauty 

Written By: Nancy Falco Chedid, M.D.

Note: This work is closely based on real events and is autobiographical. Except for my own first name, all identifying information has been withheld or changed to the best of my ability. 

The afternoon began pleasantly enough. Mind-numbing lectures behind me, I stepped outside and imbibed the balmy air of a beautiful day. The sole purpose of my life, at that moment, was to put distance between myself and anything remotely related to the study of medicine.  

    But then there was Catherine. My effervescent classmate was approaching at a healthy trot, indomitably as a cavalry charge. In the past, I had evaded invitations to join her in all manner of do-gooding; this time I was captive to her relentless sweetness and sincerity.  

    “Nancy,” she said, “I’m driving out to Syllford Clinic. Why don’t you come with me?” The apparition I had summoned, of iced tea and a plate of calamari at a harborside café, receded intooblivion.                                                                                                                      

    I heard myself say, “Sure, Cathy, I think I can manage that.” She flashed a smile with a shade of triumph.    

    I knew that Catherine’s older brother, Andrew, was rounding out his surgical training at Syllford. On most Friday afternoons, like this one, the two siblings’ labyrinthine schedules aligned and they were able to get together for coffee.Catherine’s enthusiasm for the visits was understandable, even admirable. But I wasn’t quite sure about this clinic; for me it held (and still holds) an air of mystery – which may well have been by design. 

    Syllford could be found, by those in the know, deep within a gorgeous, hilly, wooded area that was otherwise residential. The place screamed — tastefully, of course — “blue blood” and “old money”. The building’s entry hall retainedtrappings of its original incarnation as an expansive Victorian house, with darkly paneled walls, gilt chandeliers, and the rest. There was no hint of the modern surgical facility that stood beyond the erstwhile parlor doors.  

    Today, two facelifts were on the schedule – which was typical, as I learned. VIPs seeking a veneer of perfection flocked to this place. While some other cosmetic clinics had private back doors so that patients in unsightly bandages could exit discreetly, here the entire surroundings were secluded. The very rich and very famous could be cloistered, from the time of arrival through the moment they were whisked away behind blackened limousine windows.  

    According to Catherine, occasionally a patient would be discharged with a comical face sketched on the back of his headwrap by an impish surgeon. This was all in good fun, since the patient was invariably in on the joke. But such antics belied the mission of the inscrutable Syllford Clinic. 

    Aside from the cavalcade of cosmetic procedures, the clinic saw a steady flow of complex reconstructive cases. In their crusade to restore patients to normal function in society, orthopedic and plastic surgeons battled the ravages of trauma, burns, congenital deformities, and disfiguring diseases. Certain patients, mainly youthful ones, had conditions that required multiple operations in tandem with physical therapy or wound care. Logically, then, Syllford provided thoseservices within its own recovery and rehabilitation unit.  

    Catherine had seen many of the same patients during successive visits; she suspected that some had become long-term– possibly indefinite — residents of Syllford. (And I suspected that she visited this place not just to rendezvous with her brother, but to nourish her own charitable soul by keeping the residents’ company.) Evidently a miraculous infusion of grants, donations, and clinic profits were funding the patients’ care; but to us, the specifics of the arrangement would remain obscure.           

    As we sat in the entry hall, the appointed time for coffee had come and gone, and Catherine forecast that her brother would be delayed even longer in the O.R. “I know,” she said brightly. “While I’m waiting, I can introduce you to the girls.” She had previously mentioned these two patients in passing, describing them only as giggling teenagers and “best buddies”.   

    But no sooner had she made the suggestion, than Andrew appeared, in surgical scrubs. He apologized for the busyoperating schedule; he had little time to spare. I urged Catherine to seize this precious “coffee moment” with her brother.  

    Running off, she called over her shoulder, “Maybe you can still chat with the girls. They usually hang around the library.” She gestured toward an arched doorway draped in burgundy velvet. 

    I approached the library entrance, and a voice trumpeted from within, “I thought I heard Cathy!” The owner of the voice poked her head around the velvet curtain. Though obviously crestfallen on seeing me instead of Catherine, she succumbed to curiosity and stepped out.   

    Now, I am not a tall person; my close friends have been known to call me “vertically challenged”. But it occurred to me that, in order to meet the gaze of this teenager, I had to look downward. Taking in her facial features and the form of her arms and legs, I identified her condition as achondroplasia – and commended myself, in silence, for my diagnostic skills. 

    Achondroplastic dwarfism is fairly rare in the overall population, but it is the most common kind of dwarfism. In truth, even the medically uninitiated would probably recognize its typical physical traits – prominent forehead, short limbs,torso of normal length – especially since there are celebrated scholars, actors and athletes, among others, who share this condition. I guessed that the young person standing before me was receiving treatment at Syllford for severe bowing of her legs, another trait associated with achondroplasia. 

    On the faculty of our medical school at that time was a physician-scientist with a fervent interest in genetically determined diseases like this one. Statistics have repeatedly demonstrated “normal intelligence” among those with achondroplasia. But our specialist would scoff at the sterile research data, insisting that these individuals were rather moreintelligent than the general population.  

    So many people with the condition had sought medical care at our institution, that some had taken up residence in the surrounding neighborhood, and more than a few had become valued employees of our medical center. Within the hospital community, the faces of workers with achondroplasia became familiar faces. In the eyes of our medical students (myself among them), their “peculiar” features began to seem very nearly ordinary.     

    So I felt quite at ease, launching into small-talk with the teenager who was now looking up at me — and sizing me up. I began, “You were right when you said you’d heard Cathy’s voice, but she’s off having coffee with her brother. I’mNancy, her classmate. It’s really nice to meet you.” 

    Relieved and smiling, the new acquaintance gushed, “I’m Jackie. It’s great to meet you, too!”   

    We exchanged niceties. I inquired about her age, her favorite school subjects, her favorite music. But then she stopped me. “Wait,” she said, “let me get my buddy.”    

    Jackie turned toward the library. “Lucinda,” she called, “come and meet Cathy’s friend!” 

    Two sounds penetrated the velvet curtain – a dainty but unmistakable squeal of delight, and then approaching footsteps. My first glimpse of Lucinda was her silhouette as she stood under the arched doorway, backlit by the sunset gleamingthrough the library’s rear window. She had the bearing and deportment of a dancer, and I guessed that she was taller than her friend Jackie by a foot, if not more. 

   Presaging my future interest in hand surgery, the next features to draw my attention were her fingers, delicately holdingthe curtain aside. I gasped (inaudibly, I hoped) at the sight of their taut, shiny skin, marred by scars and ulcerations. I recognized the hallmarks of the autoimmune disease scleroderma – which, in fact, was the particular cross that Lucinda had to bear. But worse, much worse, her digits were oddly short and lacking nails. And so, it appeared that lovely Lucindahad lost the tips of all her fingers. 

    To blame for the tissue loss and scarring, were the sinister agents of scleroderma: inflammation and spasm of small blood vessels, and abnormal deposition of collagen. Lucinda, so young and so brutally afflicted, must have had a rare and aggressive form of the disease. I felt satisfied that this was a fair-comprehensive-assessment-based-on-my-astute-clinical-observations. In reality, however, I remained desperately ignorant of how unprepared I was, for what was yet to come.   

   Lucinda said a lilting “hello”. I intended to return the greeting, but none was forthcoming. It remained lodged in my throat – because I had seen her face.      

   My encounter with Lucinda would prove to be life-changing. I have come to believe that my experience should be relayed in unadorned detail, for the benefit of others. But even now, years later, the words come haltingly. Can I tell the tale and still uphold the dignity of the human being who is Lucinda? I pray that her privacy may be safeguarded by her seclusion, the passage of time, and the name I have lent her for the purpose of this essay: Lucinda, meaning “light”.  

    To describe her physical features, which caused me such distress (at the time), I take refuge in the plain language of clinical narrative:  

    Lucinda’s scalp was hairless, save a few thin patches of stubble. The skin around her mouth was puckered and parched, and scar tissue hampered the motion of her narrowed lips. The tip of her nose was entirely absent, causing her nostrils to appear wide and skeletal. The demon scleroderma had not spared even her eyelids, with the result that her eyes seemed to protrude alarmingly. (I regret that I was reminded, involuntarily, of ghoulish images promulgated by the “entertainment” industry to entice and haunt the viewers of horror films.)  

    “Why didn’t Catherine warn me?” was my first coherent, selfish thought. The second was, “I hope I can get through this conversation, without the girls sensing the shock that’s piercing my soul.” I felt revulsion, shame, and fear, and then embarrassment at my faltering equanimity. Finally, in the little space that was left in my heart for Lucinda and her loved ones, there appeared the seed of great sorrow, and the spark of a firestorm of rage at the unjustness of this young woman’s fate. 

    And yet – it struck me as remarkable, that Lucinda could radiate openhearted amiability, despite the restriction of her facial motion. Gracious, kind, and deferential, her courtly manner was a pleasing foil for Jackie’s unabashed exuberance. I will forever be indebted to the girls, for taking the reins of our 20-minute discussion. I don’t remember a word of it(though I do recall feeling slightly less shaken, by the time they left for a tutoring session in English literature).  

    Neither do I remember much of the conversation I had with Catherine during the drive back to the city. Probably Imanaged a self-conscious, superficial accounting of my meeting with Lucinda and Jackie. I hope I told Catherine that it was an extraordinary experience – which, regardless, would have been a spectacular understatement. 

    That evening, and throughout the next several days, my thoughts duly drifted from self-absorption to concern about Lucinda and those dear to her. I pictured them as a loving family; given Lucinda’s luminous gentility, it would have been difficult to imagine otherwise. I supposed that she would remain cloistered for the rest of her days, and that she and her family would accept this as the least dismal of their dismal options. There was little prospect of restoring her physical appearance; the entire armamentarium of reconstructive techniques would depend for success on the very blood supply that was blighted by scleroderma. 

    Society was not, and is not, ready for the Lucinda’s of the world. On the contrary, we are too easily smitten by unattainable ideals of shallow perfection; and we tend to shield ourselves – and especially our youngsters — from what is perceived as “ugly”. There is no denying our visceral response to the scary or the different, which we might dismiss as the other in order to manage our fears. But as thinking, feeling human beings, it is within our power to surpass these darkerimpulses.  

    I hold in high esteem the heroes who have taken steps in this direction – including the artists, writers, and filmmakers who have sensitively portrayed disabled or disfigured individuals for a broader audience. Sadly, though, the transformation of society as a whole is not on the near horizon. In the meantime, there are those who would channel their sense of powerlessness and frustration by delving (as I did) into professions like reconstructive surgery — in the hope, at least, of transforming patients’ lives one by one. 

    During the few months following my initial visit, and until hospital duties supervened, Catherine and I continued to frequent the Syllford Clinic. Unexpectedly, I began to look forward to these occasions, each one more than the last. By the end of my third meeting with Lucinda, it occurred to me that the anguish formerly evoked by her presence was gone.This might be construed as mere psychological tolerance, a desensitization to her appearance. But I rejected this rationale as vastly inadequate for my transcendent experience: 

    It was quite as if a mask had been lifted from Lucinda’s face. Her heretofore horrific features had become, for all intents and purposes, invisible. Now when I looked at her, I saw Lucinda, not her veil of imperfection.  

    This revelation ushered in a torrent of elation, gratefulness, and insight. I now recognized that one human being could learn to truly know another; knowledge thus acquired could not fail to extinguish the relevance of physical appearance. I have never had cause to waver from this, my firm conviction. And to this day, I marvel that I was blessed to know Lucinda.  

    I wished that I could thank her for these gifts. I longed to help Lucinda see — that her life had a sublime purpose; that the enlightenment I had received through her would inspire my mission of patient care; that the fragile cloister of her body had no power to contain her magnificent spirit.  

    Yet, I feared that these exalted truths would turn to dust, if I dared to utter them in the banal language of our everydaybanter. I never found the courage to tell Lucinda what I thought. Perhaps she already knew.   

    Nor did I succeed in thanking my classmate Catherine, for luring me to Syllford Clinic on that first beautiful day. Every attempt at expressing my gratitude seemed so meager and so trite, that eventually I abandoned the enterprise. But I did convince her to take one Friday afternoon off, and join me for calamari at the harborside café. 

Author Bio: 

Nancy Falco Chedid, M.D. is a writer, musician, physician, and educator. She has lived and worked in the eastern U.S. and the Middle East. She launched the Humanities in Medicine program at Lebanese American University School of Medicine, where she was Director of Student Affairs. Her published works include essays in life writing and illness writing, scientific articles, and a memoir. At the moment, Nancy resides in Cambridge, Massachusetts, where she teaches English as a second language for healthcare professionals and sings in an assortment of choirs. 

Filed Under: 15 Nonfiction

Sedation 

Written By: Robert Paviour

I craved sedation, after an interminable wait for surgery, not looking my best in bouffant cap and three-day beard. The pre-op area was so polar that I draped a down jacket over the flimsy johnny. “I’m getting frostbite,” I told my wife. 

Realizing the delay was making me edgy, she said, “Don’t get cantankerous. You’ve had so many surgeriesthey’ve become recreational. Use the relaxation techniques you taught your patients.” 

Humor would help more, so I sang a few snatches of “20, 20, 24 hours to go / I wanna be sedated.” These must have been the magic words: Abracadabra!, I was whisked into the OR. Staff bustled around, bringing me warm blankets, propping up my right leg with pillows to take pain off a bum hip. I was appreciative. 

Today I was scheduled for a hernia repair, prequel to hip replacement, more steps to becoming Bionic Bob.Tattoos from earlier operations, including a kidney transplant, had been mostly erased by the miraculous healing powers of our skin. But despite the prospect of seamless upgrades, sometimes a surgery should be scuttled.  

This fiasco began with a routine safety check, my surgeon asking for name and date of birth. Now giddy, and never one to pass up a captive audience, I answered, “Bad Bunny,” with an execrable Spanish accent. After hearing only asnicker, I supplied my correct name, more ready than ever to go under. But a rapid-fire, head-snapping series of mood reversals loomed, not oblivion. 

The young anesthesiologist obligingly fitted a mask over my mouth and nose. I gave her a thumbs-up in gratitude, glancing at the cocktail of drugs – deliverance so close now! She reached for the stopcock, but was interrupted byirregular, nagging beeping. Frowning, she said, “Wait,” as she checked the screen and electrocardiogram leads. 

Instead of the longed-for drugged fog, a foreboding crept over me, validated when she said, “You’re not going to like this: there are too many PVCs, a heart arrythmia.” 

 “I know what PVCs are.” And I understood she intended to call off the procedure, but after fasting, prep, and lengthy holdup, I became unhinged, behaving badly, yanking off the mask. “My EKG was unremarkable last week!”  

“Not today. I can’t take a chance.”  

“I had PVCs before, during a colonoscopy. They were nothing.” The gaggle of nurses, techs, and my surgeon milled around while we volleyed, their heads swiveling back and forth as if this was Major League Pickleball. “I swam half a mile on Wednesday. Took a four-mile hike last week.” 

Without thinking, I sat up, almost wrenching out the IV, which a tech dashed in to steady. EKG leads peeledloose, and beeps went haywire. This was morphing into farce. All I had to do was act naturally, nearly naked in the Antarctic OR, an old clown with a silly blue crown. Cranky, crazed, shivering scarecrow of a human being.  

Over a cacophony of loud chirping, the anesthesiologist said, exasperated, “I don’t want to kill you!” Techsfrantically attempted to stabilize the leads, some of which hung like limp strands of spaghetti. 

I looked around, appealing desperately. “This is iatrogenic, caused by no fluids pre-op, electrolyte imbalance, and anxiety.” My narrow range of medical knowledge put me more at risk than PVCs. Fact-check everything I say with Dr. Oz. 

“Sorry, I don’t want to kill you,” repeated the anesthesiologist. 

She shut off my monitor and the racket ceased. I lay down with a thud, deflated, speechless, seething with peevish suspicions that she was more fearful of litigation than death. Struggling for equilibrium, seesawing, I argued with myself: stop whining, it’s not like you were lying mortally wounded in a field hospital that had run out of Ketamine. Consider all the time and effort spent on you here. Then my crabbiness spiked again as I thought of reprising the whole rigmarole. My wife would have countered, “Come on, collect yourself. This’ll make a good story.” 

It was inevitable my insurrection would fail. Accepting this would have been easier had I known the decision to terminate was fortuitous. And I realized that the anesthesiologist deserved an apology: though I was right about PVCs, she had unwittingly saved me.  

When we re-booked the repair, new bloodwork revealed the precious kidney, gifted years ago from my brother,was faltering. Only immediate heroics rescued it. Had the doctor not stood her ground, I would have won the debate buttrashed my kidney.  

Author Bio:

Robert Paviour is a former journalist who became a psychotherapist, and lives in Charlottesville, Virginia. He has published stories in The North America Review, The Ravens Perch, Poydras Review, and Virginia Country. He is keenly interested in the native plants of Virginia, and spends as much time as possible in the Alleghenies and Blue Ridge mountains. He is a Medicare frequent flier. 

Filed Under: 15 Nonfiction

Taste of Death: A Coordinator Perspective

Written by: Afsaneh Morteza 
Edited by: Quinton Lowe 

It was an unusually busy day for me. People were calling back-to-back and my morning was filled with patients. I was in the middle of a call with a trial sponsor and had to run to the clinic to see a patient when I received a call from an unknown number. It was an older man calling on behalf of his wife. They did not know who else to contact and had received my number from the clinic nurse. They had an appointment with their oncologist yesterday here in Texas about her cancer management andwere already on the drive back to their house in another state, when they received an alert for scheduled imaging back in Texas that same day. Frustrated, he was calling to double check if there were any other tests they needed to do urgently for our trial eligibility, because they did not want to be called again to come back at the last minute. 

I had spoken with his wife on the phone once before, three months ago, to get her consent regarding testing her tumor’s tissue for a target protein that would qualify her for the clinical trial. We had gotten a tumor tissue sample from her metastatic liver site four weeks ago for screening, in which she tested positive by the hospital lab for the target protein. But we were still waiting for the official result from the trial sponsor company. If the result from them was negative, she would be ineligible for the clinical trial, and the next step would be hospice. In the meantime, the oncologist wanted to proceed with further imaging in case she was approved for the clinical trial, enrollment steps were already being taken. To me the oncologist was jumping the gun. I was juggling too many things at the moment to explain all the machinations, so I just told them “Trust me, you do not need to return to Texas right now. Make it home safely, and I will call you later to explain all the details.” 

A few hours later, when I finally had a quiet moment, I called them back to continue the conversation. I explained to the husband that it will be two more weeks before we receive a result from the trial sponsor. If the trial sponsor approves them for clinical trials, they can return to Texas and do the necessary imaging and tests all at once. They were relieved to know they didn’t have to return immediately and were very thankful someone had finally called them back to answer their questions. 

A week later the trial sponsor called me to say they were unable to evaluate the tissue sample. There were two options for the patient. She could agree to another biopsy, which would involve surgery, but would allow us to retest for the target protein. Alternatively, we would have to screen-fail her, which would exclude her from the clinical trial and refer her to hospice. I informed the oncologist of this update, and she asked me to discuss the situation with the patient. 

It would be my very first time talking about hospice with a patient. When I was a physician overseas, I sawmany patients who were terminal, but where I’m from, hospice isn’t a thing; instead we would continue to sell these patients hope, which was difficult. But this conversation about hospice was even more difficult. I felt very limited under the coordinator title with what I could say. When I had a calm moment in my schedule, I made the call. The same anxious voice of her husband answered. I could hear her trying to speak through him in the background, “Ask her this… ask her that”. I explained to them the new findings of the liver biopsy, and the options for moving forward. I did not mention anything about hospice, and then it came up. She grabbed the phone from her husband, “If I say I don’t want another biopsy, that means hospice, right?”. I couldn’t get myself to say “Yes”, and I couldn’t get myself to say “No,” because then I’d feel like I was selling her a false hope. Before I could say anything, she broke the silence by asking if she could call me back later. 

Two hours later she called back, her voice was shaking as she asked, “What would you do if you were in our shoes?”. Again, I froze. I wasn’t her doctor, I wasn’t a nurse, I was just a coordinator. She continued “You have been an amazing coordinator, you’ve answered all our questions, and listened to our complaints, but I am so frustrated”. She hadn’t received any treatment for three months and was fearful it meant hospice. She had heard there are options with phase 1 trials and wished to be enrolled in them. She also asked about switching back to her old meds. She was reaching for any option that wasn’t hospice. 

I thought to myself she does not seem to understand how cancer treatment works. When her cancer grows onone therapy, it means that therapy is ineffective. And she has tried all available therapies. Now she’s been referred to clinical trials, but no one on the team has discussed phase 1 trials with me. I did not want her to sense my uncertainty, so I just continued to listen and try to understand her state of mind. 

“It is not on you,” she told me. “You have been doing a phenomenal job, but all this waiting, first for the tissue biopsy result, and now knowing it has been useless, makes me very angry. Why does it take so long and who is responsible for it? I haven’t received any treatment for three months. Why can’t they just give me something?” I assured her that it’s okay to be frustrated, and that I was a safe place to vent that frustration.  

I asked if she had any physical pain. She said she didn’t have any physical pain, and that’s the irony of it. Physically she feels fine. She has been camping and hiking and overall feels great. It’s the idea of having aggressive cancer and not receiving treatment that’s been hard for her. 

I asked her if waiting to hear about the clinical trials, and the uncertainty of the enrollment process, has been hard for her. She said “That’s it exactly! I don’t know what will happen and it feels as if my life is dependent on one test or another. I have been waiting to enroll in this trial and can’t stop thinking about what would happen if I can’t. It’s the waiting that’s killing me, and it’s become more of a mind game than anything else.” 

She then burst into tears… I could understand where she was coming from, it was a hard place in life to be. Her husband took the phone and tried to calm her down. He went back asking about eligibility for the phase 1 trials. 

I felt like I shouldn’t share personal information with them, I didn’t want to make this conversation about me. I’ve never been in a situation like hers, but I’ve thought about my own mortality, and I’ve been confronted with persistent uncertainty, so I could understand aspects of their pain. It took all my courage, but finally I said “I understand the waiting game, it’s unbearable, it can drive you crazy. I studied medicine overseas and came to the United States to become a great doctor, it is my dream. For eleven years I’ve applied for residency in September, and then the following March, I get the news that I have not matched to a program. I postponed marriage, postponed having a family, limited my life with friends, and even rejected jobs thinking I couldn’tcommit to them until I got my medical license. 

In the first few years, I cried when I got rejection letters. But then I thought, maybe taking a job related to my field would help me to get a residency. I took a break from applying for a year, but the subsequent rejections were still painful. I eventually opened my eyes to accept the current reality of my life as a clinical research coordinator, as limited as it feels to me. Now I see the value in what I do and can forgive the past ten years of living my life chasing the dream, although I would be lying if I said I don’t daydream about what my life would be like if I were accepted for residency. And I proved to myself how long I was willing to wait for an opportunity. No one has ever said how long you’re supposed to wait to live your dream, and maybe I will never get anacceptance letter, but I’m still willing to wait, because there will always be hope in my heart”.  

The patient was silent for a while, and I think she had even stopped crying. Eventually I heard her voice on the other end, “What you’ve been through sounds awful, maybe even worse than what I’m dealing with!” We both laughed, it was a nice way to break the tension. She said, “I don’t know if I mentioned it before, but I have grandchildren, and I’d really like to stay alive for them”. She and her husband made it clear to me that no one else had really talked with them about what they’d been going through, no one else had expressed such sympathy for their situation. Her husband ended the conversation by saying “You will be an amazing doctor one day, you’ve done so much by just listening and talking to us in a way no one else has.”  

They decided to do another biopsy and I sent a request that day. By the end of the week, the treating physician informed me that the location of her tumor is complicated and neither surgery nor biopsy are possible. She was then referred to a different phase 1 clinical trial. A few hours later, I received a text message from her, sharing her decision with me to do the clinical trial, and thanking me for being on the human side of the team. I never met her or her husband in person, but the conversation we had touched me. It gave me a better perspective of who I am and how valuable I am to my patients. I faced my greatest fear by allowing someone else to see my vulnerability and learn about my failures. By sharing my story with a patient who trusted me, I challenged an old belief. I had thought that if she knew I had made repeated mistakes and experienced failures, I would lose her trust. Instead, she continued to trust me, and that was my victory. I have always been healthy and haven’t experienced physical pain or fear of death, but I feel the death of my identity by not practicing medicine. Not meeting professional criteria in the medical community such as a class grade, year of graduation, or a failed test, is frowned upon. These experiences, for me, feel very similar to what my patient was going through, the Waiting Game.  

I’ve thought about her often and had hoped to meet her in person. I don’t know why, but maybe it was for a sense of closure. I think the healer and the patient can often share the same pain in different parts of life. Maybe you can only meet people as deep as you have ever met yourself. 

Short Bio 

Afsaneh Morteza, MD, MPH, is a Research Coordinator in the Division of Cancer Medicine at The University of Texas MD Anderson Cancer Center. She earned her dual MD/MPH degree from Tehran University of Medical Sciences, where she conducted extensive research focused on diabetes and chronic inflammation. Currently, Afsaneh is working toward obtaining her medical license to practice as a physician in the United States. Outside of her clinical and research pursuits, she is an avid writer, swimmer, and hiker who enjoys solving mathematical problems. She loves painting and currently focuses her artwork on transmitting and evoking deep human emotions.

Filed Under: 15 Nonfiction

From My Mother’s Garden to My Own

By: J.M. Morgan

A lot of my personal story is brought to you by the letter R: Resilience.

I’ve always felt like a silent observer of sorts, watching from the sidelines as my Brain sprinted from thought to thought. Did I say the right thing? Are people judging how I look? Can anyone tell that I’m fat on Zoom?

I sat silently after my dissertation defense in the Zoom meeting’s breakout room. My dissertation chair said she would invite me back after my committee deliberated. Her words sounded like a distant soliloquy on a Broadway stage. Her voice hovered over me like a spotlight while the clanking tips of my ceiling fan served as her orchestra. She had served as my conductor throughout this tumultuous journey, watching me evolve from her protégé into a fledgling clarinet player, soft and delicate with a mercurial punch. In every meeting, she would gauge my level of excitement. I swallowed the butterflies in my stomach whole and feigned a smile through clenched teeth. Performative confidence became my baton, directing me, as I had become too frail to perform.

According to my mother, I was a mere footnote in her story. I was “her ticket out of the ghetto.” I was over four years into a Public Health doctoral degree, questioning my capabilities and my identity. It seemed like so much of my past was coming to the surface. I was a runaway rose from my mother’s rose garden, floating in the wind. I thought relocating from home would solve my problems, but my Brain rarely takes a holiday.

One afternoon, after my mother escorted my two sisters and me to church, she mentioned my high school friend, Doreen. Doreen, the daughter of a minister, assumed various roles in our church, including serving on the praise dance team. My mother mentioned that I should dress neatly and appear more put-together like Doreen. It was a simple suggestion, really. Doreen’s slim physique made her appear polished in satin skirts, custom-fitted pants, and silk blouses—all accentuated with gold accessories. For me, there were two problems: I didn’t have a job to afford my own clothes, and my weight tipped the scales. I wasn’t accustomed to accentuating my femininity. I much preferred to throw on basketball shorts with a random 90s cartoon T-shirt. Alas, church required a more elegant ensemble.

Eventually, my reluctance to assimilate with normal 16-year-olds prompted my mother to take me to Cato Fashions. Shopping with her made me acutely aware of my chubbiness. She had taken to referring to our bodies as “big as a tank,” which made me wary of colors and patterns that exaggerated my folds. My medium, dark skin with warm undertones lusted after vibrant coral, sage, and yellow hues. Yet, my insecurities made me veer towards grays and blacks. I didn’t want to be visible in a world where she reminded me of my large body.

She was adamant that I adhere to her standards. Being in her garden taught me that every scraggly petal and bent stem was a symptom of imperfection that would make people laugh at me. Even as a teenager, a period when I had no fucks to give, I felt stifled living under her roof. I was a neglected rose in soil she trampled, shaded to avoid escape. Following my parents’ divorce, the result of psychological abuse my dad (whom I called Dada) inflicted on my mother, we moved thirty minutes away. Being a daddy’s girl, I held an innate resentment towards her for initiating the divorce, but I was too busy swallowing tears in the bathroom. Secretly, I used Dada’s allowance to purchase diet pills to alter my image for her, but nothing could curb my insatiable sweet tooth.

I needed a savior, a white knight, a hero. In my senior year, I knew I had to lock in. I wasn’t going to be sheltered behind the steel bars of her words. My biggest opportunity came through the Gates Millennium Scholarship, which provides full educational funding for up to 10 years. During and after school, I wrote to alter my future while being tormented by my mother’s incessant ramblings about my body and intellect. My cousin had tattled to my mother about how hard I was working. My mother’s scowl reminded me to abide by my bedtime and to avoid making students feel inadequate by overworking. Therefore, I had to sneak to write during my classes’ free time. After securing my recommendation letters, I waited while my mother continuously rushed me to make a college decision.

Patience was never my forte, so I continued to apply for other scholarships as a contingency plan. Besides, there was no way a Black girl who lived down the street from the projects, merely separated by train tracks and backroads, would win something so prestigious. Surely the panel would think I was a social pariah. I mean, it was rooted in truth, right?

One April day in 2013, my mother told me that I had a large envelope from Gates Millennium. Deep breaths. Whatever happens, I told myself that I would be alright. I would just join the Marines to afford college. After boot camp and dieting, that uniform was sure to snatch my waist. I carefully opened the envelope and slipped out the letter. “Congratulations…one of the 1,000 Gates Scholars for the GMS Class of 2013…again, congratulations.” Those words rang in my ears as my hands shook the acceptance letter. Congratulations. It felt like I was gifted shears to pluck myself. I convinced myself that these next 10 years would be smooth sailing. Finally, I had an opportunity to flee my mother’s garden. It was time to dust the dirt from my petals to embark on my next chapter: the University of Alabama.

My mother and her on-and-off boyfriend, Mr. Otis, drove me to Tuscaloosa. The drive was awkward as my mother discovered his infidelity. She devoted the nearly three-hour car ride to softly arguing with him amid the hum of the engine. I felt like a kid, hiding under the covers, while Dada cursed my mother out from the living room couch, irate that her cooking made the house hot. This time, my mother would assume Dada’s role. I didn’t necessarily feel bad for Mr. Otis. I wasn’t keen on my mother pursuing any romances outside of Dada, despite him being terrifying. Eventually, we arrived at my dorm, and the argument ensued all the way to my suite. Luckily, the argument stayed in the common area while I unpacked in my assigned room. After my mother and Mr. Otis left, I took the time to breathe. Inhale. Exhale.

I can’t recall the exact moment when dark thoughts flooded my mind. I never could distinguish between my thoughts and those planted by my mother. Now, the voices seemed louder. Are people watching me eat in the cafeteria? Is that girl’s frown directed at me? Do my professors think I’m not speaking up enough? Are people laughing at me? Will I fail university, lose my scholarship, and be forced to move back to my mother’s house?

This internal monologue had haunted me throughout my secondary education. However, I used poetry to heal those open wounds. Now, I didn’t have much free time to immerse myself in my creative pursuits. To suppress the background noise, I rekindled my old habit: eating. Nearly every night in my room, I would eat a medium pepperoni pizza and barbecue wings. In 2016, my graduation granted me a fancy diploma along with 40 extra pounds. I couldn’t savor the victory of graduating magna cum laude.

As I settled back home, silently distraught over my unsuccessful job search, my mother mentioned my weight as if I didn’t own a full-length mirror. The stress of securing a career that aligned with my degree, coupled with my mother’s reminders that people were laughing at my unemployment, only further diminished my confidence. My irritability seemed to plant seeds of resentment in my mother, who once exclaimed, “I could have aborted y’all, but I love y’all.” I was back in the same place, and this time, I refused to wilt in her garden. I informed my mother that I was moving into a 5-bedroom student apartment. Although hesitant at first, she allowed me to move out. Once I moved out, I juggled two part-time jobs at a grocery store and pharmacy while devising a plan to avoid failing again. Like clockwork, my irritability faded, but the voices still followed.

In the summer of 2017, I applied to a public health master’s program. Truthfully, public health appeared on my radar due to my scholarship’s graduate school funding limitations. That summer, hoping to be accepted to graduate school, I didn’t renew my lease. I returned to my mother’s house, chalking it up to poor planning. Once I returned to the same environment, my irritability erupted like weeds. Her car’s hum pulling into the yard sent me into a spiral. I felt my eyes organizing an uprising in my skull, complete with swords with curved blades and tanks with squeaky wheels. Nevertheless, I endured as I always had. I had no place to go. Despite being Dada’s oldest, I held an inexplicable fear of inconveniencing him. Being sheltered prevented close relationships with most of my family members. The absence of an older adult role model hindered my options. I felt like my petals were clipped.

The wait for my decision letter was nerve-wracking. I wanted a decision, but I feared the outcome. Did I possess the academic intellect to pursue a graduate degree? Would people discover that I am dumb, like my mother always suspected? I tried to ignore these complex thoughts and focus on the future, but I kept having visions of myself living on the streets. I was overwhelmed and disoriented. In fall 2017, I received my acceptance letter to the University of Alabama at Birmingham (UAB) master’s program in Public Health. Phew. A pot of relief washed over me. I was determined to bloom.

That spring of 2018, I moved into a studio apartment that my mother chose due to her annoyance with the apartment hunting process, rather than my preferences. She and Mr. Otis were “on” again for the final time and helped me relocate. For the first time in my life, I would exist alone between my own four walls. Attending a highly regarded university in Alabama nurtured persistent feelings of inferiority. In class, I would lose focus and daydream while my Brain took me down countless rabbit holes. “How dumb can you be?” My mother’s favorite quote towards me blossomed whenever I was faced with a complicated lecture. On paper, I was keeping up, but I felt restricted by my weeds. This was especially evident in seminar classes where speaking was mandatory for participation credit. I hated speaking, but more than anything, I hated getting a bad grade.

One day, while rehearsing my TED Talk for an assignment, I felt nauseated. I chalked it up to my acid reflux. I envisioned myself screwing up my TED Talk, imagining everyone erupting in laughter. My mouth began to water. What the fuck was happening to me? I ran to the sink and started to dry heave. As I leaned over the sink, gagging and swelling with fear, I knew I had to come to terms with what I was experiencing. But first, back to my regularly scheduled program. Besides, my TED Talk was less than an hour away.

A few weeks later, I finally decided to make the call: therapy. My first therapy session was a bit awkward but comforting as the room filled with soothing notes of lavender. It was the first time I was able to share my story. Her velvety voice validated painful moments of my story and nodded along as I tried to recall hazier memories. I appreciated having an adult willing to listen to me vent, which was foreign to me. Growing up, I was told that I should be “seen, not heard”; therefore, I assumed the dual roles of speaker and listener.

The truth is that my therapist’s diagnoses of depression and social anxiety weren’t a surprise. Pursuing a Public Health degree afforded me countless avenues to learn about mental health. Admittedly, I assumed that I had immunity to mental illness. I admit that suicide had crossed my mind briefly as a teenager. Well…ok, it definitely crossed my mind more often than not, but I had fled the garden. I found refuge in the shade. Why did my past feel the need to follow me from my mother’s house? Should I move further? Given my complex psychological history, a university doctor referred me to psychiatry to seek Brain meds, my fertilizer. After I began medication, I felt compelled to keep my mother in the loop. I worried about how her internalized stigma would affect me. I became increasingly aware that I tended to veer towards gullibility whenever our seemingly innocent conversations deviated towards negativity. Nonetheless, I looked to her to be an anchor in these stormy waters, not knowing that my problem, according to her, was my absence from church. Her words still stick with me: pray. 

The truth is that I prayed constantly. I prayed when Dada psychologically abused my mother in front of us. I prayed at the domestic violence shelter my mother took us to when she contemplated divorce. I prayed throughout their divorce proceedings. I prayed for the pain to stop after I was disciplined formy disobedience. I prayed for a full-ride scholarship to flee my mother’s rose garden. I prayed my way through college and public settings. It became habitual for me to seek out a higher meaning. I knew prayer, but it seemed God was a bargaining man.

I won the full-ride scholarship, but my Brain felt like a jigsaw puzzle with random middle pieces missing. No longer being a part of my mother’s garden bothered me, so I sought out surrogate mothers. They ranged from a Black woman professor to a Black woman staff member during my internship. Whenever the relationships would sour, I felt abandoned and plagued with negative self-talk that was taught to me by my mother. Her thoughts were so enmeshed with mine that they overshadowed my voice. I was me and…not…Me? Unknown to me, I took her voice as my own. I felt that my own garden was wilting while the teachings I mastered helped hers flourish.

It seemed as if I never had time to focus on my Brain’s ramblings. I had to kick it into high gear and make a big decision to prevent returning to my mother’s house: a doctoral degree. Similar to my master’s degree, I never anticipated pursuing a doctorate. Actually, my real dream was to get paid to write books. Sigh, a girl can dream, right? Portions of my statement of purpose emphasized my privilege in being afforded this opportunity. I was deeply indebted to my scholarship, which was the gift that kept on giving. The only word from my acceptance letter that I remember is “congratulations.” I wanted to sit with that feeling. Whew. I would finally have a plan after graduation; no one would be laughing. Slowly, my roots started untangling.

After I graduated in the summer of 2019 with my master’s degree, I jumped headfirst into my doctoral program’s curriculum nine days later. In hindsight, I definitely should have taken a break, but working myself to the bone seemed less barbaric than enduring my mother’s voice. Everything was going well despite my Brain’s babbling. The COVID-19 pandemic presented a unique obstacle during my qualifying exams. The program director allowed us to take our exams virtually. On exam day, I completed the exam as I fought an endless battle questioning my worth and my capabilities. I persevered, as I always had. Besides, it was too late to quit. I had already signed my apartment’s yearlong lease. I submitted my exam before the designated time.

Once the ball was no longer in my court, something clicked. I made a dramatic bargain with myself. If I fail my exam, I should kill myself. A multitude of emotions were coming up simultaneously. The truth of the matter is that this train of thought wasn’t new— I just thought that I beat it. As all meticulous humans do, I devised a plan. I would drive my raggedy Honda Accord to the 16th Street Parking Deck and jump off. Although I had two tries to pass this exam, failure would not be an option. As soon as the notice of failure hit my inbox, I would eat a final meal: three meat lasagna and 12 vanilla ice cream sandwiches. My final drink was a toss-up between Minute Maid’s No Sugar Lemonade and Ocean Spray’s Diet Cranberry Mango juice. I may be gluttonous, but I avoided drinks with a high sugar content.

On February 12, 2021, the email came. I breathed a little as my heart raced. I muttered a prayer, pleading to pass. I embraced Cinnamon, my favorite teddy. Box breathing was what my therapist encouraged me to practice in moments like these. Inhale…1…2…3…4…Hold…1…2…3…4…Exhale…1…2…3…4…Hold…1…2…3…4. Repeat. With my hands quivering and my fears mounting, I was ready. I narrated my plan internally. I would either wake up the following morning to the sun’s kiss…or not.

“The PhD Comprehensive Examination Committee has met and reviewed your recent examination. Congratulations! You have passed your Comprehensive Examination and are now ready to begin the next phase of the doctoral program.” It took me a while to digest this email. A Black girl from the country passed comps? Surely, someone was fucking with me. I thought for sure that I bombed that exam. Phew. My master plan tangled in its own vines. They probably rounded up my 79.5 because they felt sorry for me. I tried to wrestle with this thought. I couldn’t let my Brain steal this moment from me. Not again. Passed. I kept rereading that word to silently affirm that I was good enough. I pushed any thoughts of being coddled to the back of my head. I couldn’t deal with that right now. I’m not going to deal with that. My Brain will have to figure out what she has going on for herself.

Subsequently, I activated beast mode. I developed my research question. My first concept paper meeting was intense, as my committee didn’t think my research strategy was feasible. After the meeting, my advisor scolded me for my lack of defense of my research strategy. I felt defeated. I loathed making people angry. My passiveness was always my flaw. I wasn’t accustomed to my voice being respected. Although I was an adult now, I wasn’t sure how to engage with other adults without letting them dictate the conversation. I was used to people trampling across my welcome mat and sitting on my favorite spot on the couch.

I always used a mask to conceal this element of my personality, but I felt as if I was exposed. Would I be kicked out of the program? Where would I put all of my shit once my landlord kicked me out? Where would I sleep? Should I start packing now? Eventually, I was able to pivot and restructure my research. In January of 2023, I got the email: “We are pleased that your committee has approved your proposed research topic, and we accept their recommendation that you be admitted to candidacy. Congratulations!!!” I felt relief that I was able to shift gears, albeit two years after passing comps. The other part of me felt overwhelmed.I clenched Cinnamon tightly, not knowing that my petals would be plucked one by one along my quest to complete my doctorate.

Later that year, I felt a strange jerk in my leg while lying in bed. It felt like my leg had detached itself from my body. Those few seconds were scary. This sensation continued for four days in a row until my body started involuntarily trembling. My Brain sent me down a rabbit hole, which only fueled my anxiety. Myoclonic jerk. Was this part of an impending stroke? Could I be developing multiple sclerosis? I visited my university’s health center, where I was diagnosed with a functional neurological disorder and benign fasciculation syndrome. It couldn’t be explained by an organic cause. The physical symptoms of anxiety plagued me.

Everywhere I went, I felt as if I was being followed. Driving created thoughts that I should swerve to the edge of the road. My new therapist used positive affirmations to dispel the noise in my head. Positivity felt superficial and irritating. My Brain wasn’t wired to think that way naturally. I wasn’t crazy. I’m. Not. Crazy. I tried to distance myself from my mother’s internalized stigma to facilitate better therapy outcomes. Nevertheless, her voice chipped away at my spirit.

Writing my dissertation eventually took a backseat. The overwhelm was eroding my soil and revealing my roots. I started having flashbacks, which I learned were dissociative episodes. This only made me yearn for death. My maternal grandmother, the only grandparent who lived past my childhood, passed away. My Brain was swirling with thoughts. Had I not prayed hard enough? Was I the cause of her demise? Throughout my formative education and university years, I prayed that my grandmother would survive to experience all of my graduations. I didn’t know her well, but I felt guilty that she wasn’t able to see the result of my terminal degree endeavors. This guilt was amplified by my mother’s poisoned words that my grandmother wanted to see me before her death.

My thoughts began to float in the breeze like the dandelion seeds that I sent drifting as a kid. I wanted an escape. I confessed these thoughts to my psychiatrist to get a medication adjustment. He felt the absolute gall to tell me that he could admit me to a psych ward if I was a danger to myself. Sir…I came for a med adjustment, not a Lifetime audition. I wasn’t going to kill myself. I never do. Still, I felt imminent danger at the thought of being forcefully removed from my home. Therefore, I lied about having a plan to conceal my pain. Although I purchased a tactical knife years ago, I was convinced I would never use it. After all, I’m a good girl trying my best to trim my mother’s words off my stem.

Keep it together, girl. I muttered my personal mantra to myself on the way out of his office. Sometimes, it worked. I had a lot of pressure on my shoulders. I felt my health was failing as a result of the physical manifestations of my poor mental state. This likely encouraged my body to rebel against me. For example, my Brain, despite various medical interventions, convinced me that my swollen inguinal lymph node was lymphoma. Due to the lymph node’s size abnormality, I received a biopsy on December 1st. It was the second time I was in this position.

I found a breast lump; luckily, the three ultrasounds and sole mammogram showed that it was benign. I bargained with God for the same results, although I was spiraling. Where did it come from? Why hasn’t it gone away yet? Can I have cancer and feel perfectly fine? What is my survival rate at this stage? I conveyed this information to my mother, who appeared indifferent. I didn’t know if she was hiding behind her weeds, but her lack of emotion felt cold. She was far more concerned with giving me exercises to manage my large breasts and double chin than with my battle with cancer. I knew I would be on my own, emotionally and financially. I started to look up physician-assisted suicides in case of a malignant result. I had become increasingly fascinated by the process. Oddly, I wanted out, but I didn’t want the blood to be on my hands.

At this stage, patience was unacceptable. I understood a biopsy required lengthy testing, but I was aggravated that modern technology still required extended waiting. How could they expect me to cope? Ridiculously asinine, if you ask me. I distracted myself with food, video games, and sleep. Sweets felt like a long kiss goodnight as I tucked myself into bed. I wish someone else could have dealt with this problem for me. On December 8th, I preoccupied myself by going on a Target run. While mindlessly walking down the beauty and makeup aisles, I received a portal message from my referring doctor. Inhale. Exhale. “I have looked over the biopsy results, and everything looks good…no sign of cancer.”

Whew. My petals of happiness blanketed me with their affection. It had been nearly a whole damn year, as I was in and out of doctor appointments for these two cancer scares. To end up with nothing under these circumstances was phenomenal. As I said, God is a bargaining man. I had promised him I would change my mindset surrounding my dissertation. Nearly all of my cohort had already graduated. I was inclined to use that as a motivator. As a birthday gift to myself, I vowed to graduate in the summer semester before my 30th birthday in 2024. I repurposed my tactical knife from a weapon into a tool to prune my stems and thorns.

I listened intently to the clanking tips of my ceiling fan to calm my nerves as my committee deliberated. As I waited for my advisor’s text, I videochatted with my two younger sisters while waiting in the breakout room. I had to take my mind off the impending doom feeling in the depths of my stomach. I felt like a child playing dress up in my Dora wig and satin shirt. Surely, my committee could see that I was an imposter. I didn’t feel deserving of this moment, even though I worked my ass off these past seven months. Although my sisters didn’t fully understand this moment’s importance, they assured me that I earned it. As their words of encouragement sank in, I reflected back to the beginning. Resilience. In this moment, I felt like I wasn’t silently observing my life as it flickered by. Even now, though my confidence is fleeting and delicate, I’ve learned that perfection is self-torture camouflaged as discipline.

As I laughed with my sisters to drown out my anxieties, I received a text from my advisor, who requested that I rejoin the Zoom call. I hung up with my sisters and held Cinnamon once more. This was the culmination of everything that I had sown and toiled for. If I failed this time, I would go down fighting and clawing for blood. I arrived at the end of their deliberations. My advisor smiled and announced, “Congratulations, Dr. Morgan!” I still can’t quite articulate how I felt. I was stunned and overwhelmingly grateful as I thanked my committee for their support.

The next day, after the paperwork was finalized, my advisor sent a school-wide email: “Please join me in congratulating Dr. Morgan on successfully defending her dissertation!” Whether the attention was negative or positive, I felt undeserved. I realized I had put in the work, but it felt like it belonged to someone else. On August 10th, after I uprooted myself from my mother’s garden, I was hooded and earned my PhD in Public Health. The next month, I started a postdoc at the University of Arkansas in Fayetteville. I left my mother’s rose garden behind. Being in a new state without the commitment of school allowed me to focus on my mental health.

That next year, my new therapist recognized my thought patterns instinctively and audibly confirmed something I had secretly feared: obsessive-compulsive disorder (OCD). Inhale. Exhale. Everything resonated. Before, it was as if I were driving down an endless tunnel with a one-way sign, but now I finally had the opportunity to make a detour. Learning that my Brain’s faulty wiring didn’t align with my true intentions made me feel like the architect of my own story. I had been repotted and watered all at once, all because of my resilience. All along, this had been my story, though her voice lingered in the background. I slowly reached for the baton to direct my own performance. I was no longer her rose. I planted my own garden. My roses would weather any storm. I would be my own gardener. Now…where did I put my fertilizer?

Short Author Bio:

J.M. Morgan is a postdoctoral researcher at UAMS. She is a poet, storyteller, and dreamer who explores identity through her writing. She published her debut poetry collection, silent scream, in 2021. When she isn’t buried in her academic and creative writing, she enjoys crafting, watching The Golden Girls, playing video games, and learning to crochet.

Filed Under: Mehta 2026 Creative Non-Fiction

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